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Write To Karl Loren What Is Pain?

International Association for the Study of Pain®(IASP®)

Source

 


Welcome to IASP®.  We are the largest multidisciplinary international  association in the field of pain. Founded in 1973, IASP is a non-profit professional organization dedicated to furthering research on pain and improving the care of patients with pain. Membership in IASP is open to scientists, physicians, dentists, psychologists, nurses, physical therapists, and other health professionals actively engaged in pain research and to those who have special interest in the diagnosis and treatment of pain. Currently IASP has 6744 individual members from 107 countries.

 
 

The purposes of this site are to:

For further information or to join IASP please contact the IASP Headquarters Office:

IASP Secretariat
909 NE 43rd St., Suite 306
Seattle, WA 98105-6020 USA
Tel: 206-547-6409
Fax: 206-547-1703
 

To comment on this site, contact the IASP Webmaster iaspdesk@juno.com

Disclaimer

The International Association for the Study of Pain (IASP) does not assume responsibility for the information provided and opinions expressed within this server. Ideas or opinions expressed by the developers or participants in the IASP server do not necessarily reflect those of the Association or of the Officers and Councillors. The IASP assumes no responsibility for any injury and/or damage to persons or property as a matter of products liability, negligence or otherwise, or from any use or operation of any methods, products, instruction, or ideas contained in the material provided by this server. Because of the rapid advances in the medical sciences, the IASP recommends independent verification of diagnoses and drug dosages. Acceptance of corporate support for this server does not indicate or imply endorsement of the company or its products by IASP. Linkage to another server does not imply endorsement of products, opinions, methods, instruction or ideas identified or provided by that server.

This site contains links to other Internet sites. These links are not endorsements of any products or services in such sites, and no information in such site has been endorsed or approved by this site.


Entire contents © 2003 by The International Association for the Study of Pain unless stated otherwise.

IASP is a non-profit, tax-exempt association registered in the United States (ID: 23-7416302). We welcome donations for the furtherance of the goals and objectives of the Association.

We subscribe to the HONcode principles of the Health On the Net Foundation

 

 

This page was updated on April 9, 2003.


International Association for the Study of Pain®


Source

Public Information

This page provides a list of professional medical organizations, patient outreach groups, and other organizations that provide information on pain and related topics to the general public. Each organization listed has confirmed the information supplied below. The list is arranged by country, reflecting the global nature of the activities of the International Association for the Study of Pain (IASP®). To receive materials listed or for additional information, contact the specific organizations named at the addresses given for their activities.

In addition, there are at present 57 national or regional chapters of IASP, many of which have developed or are developing patient information programs specific to their region. Some also have home pages on the internet and can be easily contacted by a direct link from the IASP website. Please refer to the IASP Chapter page for this information.

The following services are NOT available from the International Association for the Study of Pain but may be available from some of these other sources:

- Patient information service or patient information telephone line
- List of pain treatment centers
- Physician referral service
- Reprints of articles or pamphlets/booklets on specific pain syndromes or
treatment

The presentation of this list of organizations does not constitute endorsement or certification by IASP or its Board of Directors of these organizations or of any publications or activities sponsored by such organizations.

 

MEDICAL NEWSLETTERS
Technical Corner Pain: Clinical Updates
Pain Definitions

 

IASP CHAPTERS
(60 + countries)

 

GENERAL RESOURCES

 

Other Resources from Various Countries
Australia Croatia Kenya Sri Lanka
Austria Cyprus Norway Switzerland
Belarus France Portugal United Kingdom
Benin Georgia Russia  USA
Brazil Ghana South Africa Zimbabwe
Canada India    


GENERAL RESOURCES

Mayday UPPP:   www.painandhealth.org  

MEDLINE and other resources: http://pubmed.gov and http://medlineplus.gov 

National Health Information Center: www.healthfinder.gov   

Spineuniverse:  www.spineuniverse.com 

WHO: http://www.who.ch/ 

OTHER RESOURCES BY COUNTRY

AUSTRALIA

Australian Neuroscience Society
Attn: Dr. P. D. Marley
Dept. of Pharmacology
Univ of Melbourne
Parkville, VIC 3052, Australia
www: http://www.path.unimelb.edu.au/~ans/anshome.htm
Australian Psychological Society Ltd
PO Box 38
Flinders Lane PO
Melbourne VIC 8009, Australia
Tel: 61-3-8662-3300
Fax: 61-3-9663-6177
email: confer@psychsociety.com.au
www: www.aps.psychsociety.com.au
Resources: In Australia - Psychologist referral service

AUSTRIA
 
Österreichische Gesellschaft für Gynakologie und Geburtshilfe
Wilhelminenspital der Stadt Wien
Vorstand: Prof. Dr Heinrich Salzar
16, Montieatrtstrasse 37
1171 Vienna, Austria
email: heinrich.salzer@univie.ac.at 
Resources: Information ‘hot line’
BELARUS

Belarussian Children's Hospice
Fax: 00-375-(0)17238-85-31
Email: hospice@user.unibel.by

BENIN
 
Soc. Gynecologie/Obstetrique
Attn: Prof E. Auihonou, CRRHD, Ctr. National Hospitalies Univ.
BP 386, Cotonou, Republic of Benin
Tel: 229-300001
Fax: 229-301288
email: alipini@syfed.bj.refer.org 
 
BRAZIL
 
Associacao Medica Brasileira -
Programa Nacional de Educacao Continuada em Dor e Cuidados Paliativos
(National Educational Program on Pain & Palliative Care)
Rua Sao Carlos do Pinhal, 324 - Bela Vista
01333-903 Sao Paulo, Brazil
Tel: 55-11-2879206; or cell phone: 55-11-9221-7797
Fax: 55-11-3061-3557
email: figuero@amcham.com.br ou jfiguero@aol.com.br
Publications: Information brochures (free)
  Books/tapes/videos (free)
Other: TV programs, community channel, courses, symposiums, information ‘hot line’, CD ROM
 
Sociedade Brasileira de Neurosciencas e Comportamento (SBNec)
Secretario Geral Gilberto Xavier, Dept Fisiologia - UBUSP
Rua do Matao, Travessa 14, 321
05508-900, Sao Paulo, SP, Brazil
email: SBNec@ib.usp.br
www: http://www.ib.usp.br/sbnec
 
CANADA
 
BC Cancer Agency
Attn: Dr. H. Karsai
600 W. 10th Ave.
Vancouver BC V5Z 4E6, Canada
Tel: 604-877-6000
Fax: 604-877-0585
email: hkarsai@bccancer.bc.ca
www: www.bccancer.bc.ca
 
Canadian Anesthesiologists' Society
1 Eglinton Avenue East, Ste 208
Toronto, ON, M4P 3A1, Canada
  CAS Chronic Pain Management Section
email: anesthesia@cas.ca
www: http://www.cas.ca
Publications: Patient Information brochures (purchase)
  Monthly Journal 13 issues (purchase) Subscription/membership

Canadian Cancer Society
10 Alcorn Avenue, Suite 200,
Toronto, ON M4V 3BI, Canada

www: www.cancer.ca/info/pubs
Publications: Information brochure in French and English.  Full text online
Canadian Chiropractic Association
1396 Eglington Ave., West
Toronto, ON M6C 3E4, Canada
Tel: 416-781-5656
Fax: 416-781-7344
email: ccachiro@ccachiro.org
www: www.ccachiro.org
Publications: Information brochures
Other: Support groups
  Information 'hot line'
 
Canadian Orthopaedic Association
1440 S Catherine St West, Ste 320
Montreal, PQ, H3G 1R8, Canada
Tel: 514-874-9003
Fax: 514-874-0164
email: info@coa.org
www: http://www.coa.org
Publications: Information brochures (free) (purchase)
  Books/tapes/videos (free) (purchase)
Referrals: Physician/Healthcare services
Other: Conferences/ Support groups/information ‘hot line’
Help for Headaches
647 Oulette Ave, Suite 104
Windsor, ON N9A 4J4,  Canada
Tel: 519-252-3727
Fax: 519-252-5537
email: brent@headache-help.org
www: http://www.headache-help.org 
Publications: Information brochures (free)
  Books/tapes/videos (purchase)
Referrals: Physician/Healthcare services
Other: Conferences
 
Institute for the Study and Treatment of Pain
5655 Cambie St
Vancouver BC, V5Z 3A4, Canada
Tel: 604-264-7867
Fax: 604-264-7807
email: istop@istop.org or ims_istop@hotmail.com
www: www.istop-pain.com
Publications: Information brochures (free)
  Books/tapes/videos (purchase)
 
International Federation on Aging
425 Vigor Street West, Suite 520
Montreal PQ H2Z 1X2 Canada
Tel: 1-514-396-3358
Fax: 1-514-396-3378
email: ifa@citenet.net
www: http://www.ifa-fiv.org
 
North American Chronic Pain Association of Canada
60 Lorne Ave,
Dartmouth, NS, B2Y 3E7, Canada
Tel: 902-463-5757; 800-616-7246
Email: nacpac@sympatico.ca
www: www.chronicpaincanada.org
Publications: Information brochures (free)
  Books (purchase)
Other: Support Groups
 
The Ontario Physiotherapy Association
55 Eglington Ave. East, Suite 210
Toronto, ON M4P 1G8 Canada
Tel: 416-322-6866
Fax: 416-322-6705
Email: physiomail@opa.on.ca
www: www.opa.on.ca
Other: Healthcare referral service


CROATIA

Croatian Society for Hospice & Palliative Care
Attn: M. Persoli-Gudelj, PhD, MD
Skopska 9
47000 Karlovac, Croatia


CYPRUS

Cyprus Association of Cancer Patients and Friends
PO Box 23868
1687 Nicosia, Cyprus
Tel: 00357-2-34544
Fax: 00357-2-346116
email: caocpat@cytanet.com.cy
Publications: Information brochures (free)
  Books/tapes/videos (free)
Referrals: Physician/Healthcare services
Other: Support groups/ Home Care Service/

Psychosocial support service


FRANCE

Groupe Pluridisciplinaire de Recherches sur la Douleur
Attn: F. Vazou
27 rue Victor Hugo
37000 Tours, France
Tel: 02-47-60-2061
Fax: 02-47-05-9722
Other: Research/study on non-speaking and/or non-understanding patients


GEORGIA

Georgian Neuroscience Association
Attn: Dr. Merab G. Tsagareli
Dept Neurophysioly of Pain and Analgesia
Beritashvili Institute of Physiology
14 Gotua Street
380060 Tbilisi, Georgia
Tel: 995-32-371149
Fax: 995-32-941045
email: gena@ip.osgf.ge
www: www.itic.org.ge/gena
Publications: Information brochures (free)
  Books/tapes/videos (free)
Referrals: Physician/Healthcare referral service
Other: Support groups/information ‘hot line’


GHANA

Beware of Aids (BAWA)
Attn: M. O. Duodu
Box 76
Offinso-Ashanti
Ghana
Tel: 233-51-20341 / 2; 233-24-363232
Fax: 233-51-25306
email: goldlink@ncs.com.gh
Other: Support groups, I. E. C.
Also: BAWA Office in UK (listed under 'United Kingdom')
 
Ghana Cancer Society
Attn: Nana Esaa Mensaii
PO Box 14747
Accra, Ghana
Tel: 00233-21-227816
Fax: 00233-21-237391
Publications: Information brochures (free)
  Books/tapes/videos (free)
Other: Physician/healthcare referral service


INDIA

Association for the Welfare of the Handicapped
Post Box 59, 17/194A,
M'Square Complex,
Pavamani Road
Calicut 673001, India

Tel: 91-495-720601, 91-495-723586
Fax: 91-495-720028
email: awhclt@md3.vsnl.net.in
www: www.awhonline.org
Referrals: Physician/Healthcare referral service
Other: Support groups
  Supply of medicines free and at cost price


KENYA

Sickle Cell Foundation of Kenya
Attn: Noah Naluande
PO Box 41457
c/o Tel 224430
Mombasa, Kenya
 

NORWAY

Norsk Nevrologisk Forening
c/o Espen Dietrichs
Nevrologisk Avdeling
Ulleval Hospital
00407 Oslo, Norway
www: www.nevrologi.no
Other: Information 'hot line' (in Norwegian)


PORTUGAL

Sociedade Portuguesa de Neurologia
Servico Neurologia
Hospitalis da Univ de Coimbra
3049 Coimbra, Portugal
Tel: 351-39-400-448
Fax: 351-39-22-637
email: haneuluc@mail.telepac.pt


RUSSIA (Siberian Section)

Interregional Siberian Anti-Pain Fund
130 Nemirovich-Danchenko Street
Novosibirsk  630087,  Russia
email: pain@painstudy.ru
www: www.painstudy.ru/ 
Publications: Information brochures (free)
  Journal "Pain and its Treatment" (Purchase)
Other: Conferences


SOUTH AFRICA, REPUBLIC OF

Hospice Association of the Witwatersrand
PO Box 87600
97 Houghton Drive, Houghton,
Johannesburg, 2041, Republic of South Africa
Referrals: Physician/Healthcare services


SRI LANKA
Saviya Development Foundation
24/A Wewelwala Rd
Galle, Sri Lanka

Tel: 94-9-45781
Fax: 94-9-34281
email: sdf@sri.lanka.net
Publications: Information brochures (free)
  Books/tapes/videos (free)
Other: Support groups


SWITZERLAND

International Union Against Cancer
c/o I. Mortara
3 Rue du Conseil-General
1205 Geneva, Switzerland
Tel: 41-22-809-18-11
Fax: 41-22-809-18-10
email: info@uicc.org
www: http://www.uicc.org
Publications: Information brochures (free)
  Books/tapes/videos (free) (purchase)
Referrals: Physician/Healthcare services
Other: Conferences/ Support groups/information ‘hot line’
 
World Health Organization
Attn: Dr L.L. Prilipko, Chief, Neurosciences Division of Mental Health
1211 Geneva 27, Switzerland
Tel: 41-22-791-3621
Fax: 41-22-791-4160
email: prilipkolewho.ch

UNITED KINGDOM

Association of Anaesthestists of Great Britain and Ireland
9 Bedford Square
London WC1B 3RA, United Kingdom
Tel: 020-7631-1650
Fax: 020-7631-4352
email: info@aagbi.org
www: www.aagbi.org
Resources:  
Publications: Information brochures (free)

Backcare Think-Back
Attn: Pete Moore
PO Box 6323
Chelmsford, Essex, CM1 2FX, United Kingdom

Tel: 01245-266488
email: enquires@think-back.com
www: www.think-back.com 
Publications: Information brochures (purchase)
  Books/tapes/videos (purchase)
Other: Back Awareness Day organised/ Support groups
  Pain Management Programme
 
Beware of Aids (BAWA)
(UK office for BAWA Ghana - see listing under Ghana)
97 Thirlmere House
401 Summerwood Road,
Isleworth, Middlesex,
Hounslow, TW7 7QX, United Kingdom
Tel: 44-208-744-1011
 
Endometriosis Association European Headquarters
89 Southgate Road
London N1 3JS, United Kingdom
Tel: 44-(1)414-355-2200
Fax: 44-(1)414-355-6065
email: endo@endometriososassn.org
www: endometriosisassn.org  
Resources:  
Publications: Information brochures (free)
  Books/tapes/videos (purchase)
Other: Support groups/information ‘hot line’/ research programs
  Physician/healthcare referral service

Fibromyalgia Association UK

Tel: 44-(0)1202-259155
email: info@ukfibromyalgia.com
www: www.UKfibromyalgia.com  
Publications: Monthly magazine (subscribe)
  Fortnightly research bulletin - emailed (free)
Other: Online consultations with resident doctor;  online benefits advice service
  Support groups

Migraine Trust, The
45 Great Ormond St
London WC1N 3HD, United Kingdom

Tel: 44-028314818
Fax: 44-02831-5174
email: migrainetrust@compuserve.com
www: www.migrainetrust.org
Publications: Information brochures and Factsheets (free)
  Books (purchase: £6.50)
Other: Information 'hot line'
  Support groups
Neuropathy Trust
PO Box 26
Nantwich CW5 5FP United Kingdom
www: www.neuropathy-trust.org
Publications: Information leaflets (free with S.A.E.)
  Booklets (purchase)
  Subscriber's journal 'RELAY' (Three times per annum)
Other: Support groups and UK 'Local contact network' (telephone support network)
Pain Concern
PO Box 13256
Haddington,  EH 41 4YD, United Kingdom
Tel: 44-1620-822572
Fax: 44-1620-829138
email: painconcern@binternet.com
www: www.painconcern.org.uk
Pain Relief Foundation
Clinical Services Centre,
University Hospital Aintree,
Loweer Lane,
Liverpool, L9 7AL, United Kingdom
Tel: 441-(0)151-523-1486
Fax: 441-(0)151-521-6155
email: pri@liv.ac.uk
www: http://www.liv.ac.uk/pri/
Publications: Information brochures
  Books/tapes/videos
Other: Support groups
Pain Wise UK
33 Kingsdown Park
Tankerton, Kent CT5 2DT
United Kingdom
Tel: 44-01227-277993
Fax: 44-01227-277993
www: www.painsupport.co.uk
Publications: Information brochures (purchase)
  Books/tapes/videos
Other: Support groups; Physician/healthcare referral service
  Information 'Hot line'
Physiotherapy Pain Association
9 Lowenway, Threemilestone,
Truro, TR3 6TR, United Kingdom
Tel: 01872-252160
Other: Support groups
 
Trigeminal Neuralgia Assn. (UK)
98 Hayes Lane
Bromley, Kent BR2 9EP, United Kingdom
email: TNALondon@hotmail.com
www: http://www.tna-uk.org.uk
Publications: Information brochures (free)
Other: Helpline for patients and carers; Support groups

UNITED STATES OF AMERICA

Agency for Health Care Policy and Research
AHCPR
PO Box 8574
Silver Spring, MD 20907, USA
 
Tel: 1-800-4-CANCER
Fax: 301-402-5874
www: www.cancer.gov/coping.html
Publications: Information brochure on managing cancer pain available in Spanish and English.
Also, full text available online
 
American Academy of Hospice and Palliative Medicine
4700 W. Lake Ave
Glenview, IL 60025-1468, USA
Tel: 703-787-7718
Fax: 703-435-4390
email: aahpm@aahpm.org
www: http://www.aahpm.org
Publications: Information brochures (free)
  Books/tapes (purchase)
 
American Academy of Orofacial Pain
19 Mantua Rd
Mt Royal, NJ 08061, USA
Tel: 856-423-3629
Fax: 856-423-3420
Email: aaopco@talley.com
www: www.aaop.org 
Publications Information brochures (purchase)
American Academy of Pain Medicine
c/o J. Engle
4700 W. Lake Ave
Glenview IL 60025-1485
Tel: 847-375-4731
Fax: 847-375-4777
email: aapm@amctec.com
www: www.painmed.org 
Publications: Information brochures (purchase)
American Academy of Physical Medicine & Rehabilitation
One IBM Plaza, Ste 2500
Chicago, IL 60611-3604, USA
Tel: 312-464-9700
Fax: 312-464-0227
email: info@aapmr.org
www: http://www.aapmr.org
Publications: Information brochures (free)
Referrals: Physician/Healthcare services
 
American Alliance of Cancer Pain Initiatives
1300 University Avenue, Room 4720
Madison, WI 53706, USA
Tel: 608-265-4013
Fax: 608-265-4014
email: aacpi@aacpi.org
www: www.aacpi.org
Publications: Information brochures
  Books/tapes/videos (loan) (purchase)
 
American Association of Oral & Maxillofacial Surgeons
9700 W. Bryn Mawr Ave.
Rosemont, IL 60018, USA
www: http://www.aaoms.org
Publications: Information brochures on Web site (free)


American Board of Pain Medicine
4700 W. Lake Ave
Glenview, IL 60025-1485, USA

Tel: 847-375-4726
Fax: 847-375-6326
email: abpm@amctec.com
www: www.abpm.org 
Referrals: Physician/Healthcare Geographical listing
 
American Cancer Society 
1599 Clifton Road NE, Atlanta, GA 30329-4251
 
Tel: 1-800-422-6237 (1-800-4-CANCER)
www: http://cis.nci.nih.gov    or www.rex.nci.nih.gov  
  or www.cancernet.nci.nih.gov
Publications: Information brochures (free); Full online texts available
  Books/tapes/videos (purchase)

 
American Chiropractic Association
1701 Clarendon Blvd
Arlington, VA 22209, USA
Tel: 703-276-8800
Fax: 703-243-2593
email: memberinfo@amerchiro.com
www: http://www.amerchiro.org/
 
American Chronic Pain Association
c/o P. Cowan, PO Box 850,
Rocklin, CA 95677-0850, USA
Tel: 916-632-0922
Fax: 916-632-3208
email: ACPA@pacbell.net
www: http://www.theacpa.org/
Publications: Information brochures (free)
  Books/tapes/videos (purchase)
Other: Support groups
 
American College of Occupational & Environmental Medicine
1114 N. Arlington Heights Rd
Arlington Heights, IL 60004-4770, USA
Tel: 847-818-1800
Fax: 847-818-9266
www: http://www.acoem.org
Publications: Information brochures (free) (purchase)
  Books/tapes/videos (purchase)
Other: InstaFax - Fax back Service

American College of Obstetricians & Gynecologists
409 12th St. SW
Washington DC 20024, USA
Email: resources@acog.org
www: www.acog.org
Publications: Information brochures (free single copy) (purchase multiple copies)
 
American Council for Headache Education
19 Mantua Rd,
Mt. Royal, NJ 08061, USA
Tel: 609-423-0258
Fax: 856-423-0082
email: achehq@talley.com
www: http://www.achenet.org
Publications: Information brochures (free)
  Books/tapes/videos (purchase)
Referrals: Physician/Healthcare services
Other: Support groups, 
  Information 'Hotline' 800-255-ache
 
American Fibromyalgia Syndrome Association Inc.
6380 E. Tanque Verde Rd, Suite D
Tuscon, AZ 85715, USA
Tel: 520-733-1570
Fax: 520-290-5550
email: achehq@ache.smarthub.com
www: http://www.afsafund.org
Publications: Information brochures (free)
Other: Support groups
American Orthopsychiatric Association
330 7th Ave #18 fl
New York, NY 10001-5010, USA
Tel: 212-564-5930
Fax: 212-564-6180
email: amerortho@aol.com
Publications: Information brochures (purchase)
  Books/tapes/videos (purchase)

American Osteopathic Association
142 E. Ontario St
Chicago, IL 60611, USA

Publications: Information brochures
Referrals: Physician/Healthcare services
Other: Information ‘hot line’
American Pain Foundation
201 North Charles St., Suite 710
Baltimore, MD 21201, USA
Tel: 888-615-PAIN (7246)
Fax: 410-385-1832
Email: painfoundation@aol.com
www: www.painfoundation.org
Publications: Information brochures (free)
American Society of Clinical Oncology
225 Reinekers Lane, Ste 650,
Alexandria, VA 22314-2875, USA
Tel: 703-299-0150
Fax: 703-299-1044
email: asco@asco.org
www: http://www.asco.org
Publications: Pain Curriculum
 
American Society of Anesthesiologists
Attn. Direcotor of Communications, 520 N. Northwest Highway
Park Ridge, IL 60068-2573, USA
Tel: 847-825-5586
email: mail@ASAhq.org
www: http://www.asahq.org
Publications: Information brochure "The Management of Pain" (free)
 
American Society of Law, Medicine & Ethics
c/o B.W. Moulton, Executive Director
765 Commonwealth Ave, Suite 1634
Boston, MA 02215, USA
Tel: 617-262-4990
Fax: 617-437-7596
email: info@aslme.org
www: http://www.aslme.org
Publications: Information publications (purchase)
  Loose-leaf materials (free)
  Website materials (free)
 
American Society of PeriAnesthesia Nurses
6900 Grove Rd
Thorofare, NJ 06086-9447, USA
Tel: 609-845-5557
Fax: 609-848-1881
email: aspan@slackinc.com
www: http://www.aspan.org
Publications: Books/tapes/videos (purchase)
 
American Society of Regional Anesthesia and Pain Medicine
Attn: John A Hinckley, 1910 Byrd Ave, Ste 100
PO Box 11086
Richmond, VA 23230-1086, USA
Tel: 804-282-0010
Fax: 804-282-0090
email: asra@societyhq.com
www: http://www.asra.com
Publications: Books/tapes/videos (purchase)
 
Association for Applied Psychophysiology & Biofeedback
10200 W. 44th Ave. Ste 304
Wheat Ridge, CO 80033, USA
Tel: 303-422-8436
Fax: 303-422-8894
email: aapb@resourcenter.com
Publications: Information brochures (free)
  Books/tapes/videos (purchase)
 
Association of Rehabilitation Nurses
4700 W. Lake Ave
Glenview, IL 60035-1485, USA
Tel: 847-375-4710
Fax: 847-375-4777
email: info@rehabnurse.org
www: http://www.rehabnurse.org
Publications: Books/tapes/videos (purchase)
Association of Pediatric Nurses
4700 W. Lake Ave
Glenview, IL 60025-1485, USA
Publications: Information brochures (free)
  Books/tapes/videos (free)

CancerSource - in partnership with the Oncology Nursing Society
40 Tall Pine Drive
Sudbury, MA 01776

email: info@cancersource.com
www: www.CancerSource.com/resources 
Publications: Information brochures (free) online
  Self-care guides
Other Support groups (online)
 
City of Hope Pain/Palliative Care Resource Center
(formerly known as : Mayday Pain Resource Center)
Attn. S. Pejsa,
Coordinator, Pain Resource Center
City of Hope Medical Center
1500 East Duarte Road
Duarte, CA 91010, USA
Tel: 626-359-8111 x3829
Fax: 626-301-8941
email: mayday_pain@.coh.org
www: http://mayday.coh.org (do not need www)
Publications: Information brochures (free) (purchase)
  Books/tapes/videos (free) (purchase)
Endometriosis Association
8585 N. 76th Pl
Milwaukee WI 53223, USA
Tel: 414-355-2200
Fax: 414-355-6065
email: endo@endometriosisassn.org
www: www.endometriosisassn.org
Publications: Information brochures (free)
  Books/tapes/videos (purchase)
Referrals: Physician/Healthcare services
Other: Conferences/ Support groups/information ‘hot line’
  Teen program; Networking opportunities
Endometriosis Association, Houston Support Group
Attn: Ellen T. Johnson, Group Coordinator
PO Box 820306
Houston, TX 77282-0306, USA
Tel: 713-954-4748
email: info@endohouston.org
www: www.endohouston.org 
Resources:  
Publications: Information brochures (free)
  Books/tapes/videos (purchase)
Other: Support groups / other meetings
  Physician /healthcare referral service
  Information ‘hot line’
 
Endometriosis Research Center
World Headquarters
630 Ibis Drive
Delray Beach, FL 33444, USA
 
Tel: 800-239-7280
Fax: 561-274-9117
email: EndoFL@aol.com
www: www.endocenter.org 
Resources:  
Publications: Information brochures (free); Extensive educational library
  Books/videos (purchase)
Other: Educational conferences
  Global Support groups, online and off
  Awareness program; community outreach
 
 
 
Electro Therapy Association
PO Box 33189
Tulsa, OK 74153-1189, USA
Tel: 918-663-0297
Fax: 918-663-0298
email: electro@electrotherapy.com
www: www.electrotherapy.com
Publications: Information brochures (free)
  Books/tapes/videos (free) (purchase)
Referrals: Physician/Healthcare services

Fibromyalgia Network
PO Box 31750
Tuscon, AZ 85751-1750, USA

Tel: 800-853-2929
Fax: 520-290-5550
email: fmnetter@msn.com
www: www.fmnetnews.com
Publications: Information brochures
  Quarterly newsletter ($25)
Referrals: Physician/Healthcare services
Other: Conferences/ Support groups/information ‘hot line’
 
Greater Philadelphia Pain Society
c/o L. Kamen, DO
Moss Rehab. Outpatient Ctr
9892 Bustleton Ave
Philadelphia, PA 19115, USA
Tel: 215-673-6552
Fax: 215-673-5946
email: lenkamen@aol.com
Other Lecture series and yearly seminars
 
Health Education Resource
PO Box 3811
Salem, OR 97302, USA
Tel: 503-362-9778
email: plt3955@gateway.net
Publications: Information brochures
Other Courses for patients re: chronic pain
 
Hospice Education Institute
190 Westbrook Rd
Essex CT 06426-1510, USA
Tel: 860-767-1620
Fax: 860-767-2746
email: hospice all@aol.com
www: www.hospiceworld.org
Publications: Information brochures (free)
Other Information 'hot line'
 
International Pelvic Pain Society
Ste 402 Women’s Medical Plaza
2006 Brookwood Medical Center Dr,
Birmingham, AL 35209
Tel: 205-877-2950
Fax: 205-877-2973
email: pelvicpain@aol.com
www: http://www.pelvicpain.org
Publications: Information brochures (free)
  Books/tapes/videos
Referrals: Physician/Healthcare services
 
International Association for Hospice and Palliative Care (IAHPC)
PO Box 131639,
Ann Arbor, MI 48113
Tel: 734-662-5071
Fax: 734-662-0506
email: WmFarr@aol.com
www: www.hospicecare.com
 
Interstitial Cystitis Association
51 Monroe St., Ste 1402
Rockville MD 20850, USA
Tel: 1-800-HELP-ICA
Fax: 301-610-5308
email: ICAmail@ichelp.org
www: www.ichelp.org
Resources:  
Publications: Information brochures (free)(purchase)
  Books/tapes/videos (purchase)
Referrals: Physician/Healthcare services (free)
Other: Support groups
  Information 'hot-line'
For 'Mayday Pain Resource Center' please see:
City of Hope Pain/Palliative Care Resource Center
National Association of Rehabilitation Professionals
1661 Worcester Rd, Ste 203,
Framington, MA 01701-5401, USA
Tel: 508-820-8889
Fax: 508-820-4337
email: NARPPS@ix.netcom.com
www: http://www.NARPPS.org
Publications: Information brochures (purchase)
  Books/tapes/videos (purchase)
 
National Cancer Institute (NCI) - Free Cancer Patient Education Database (CPED)
Attn: Sanjay Koyani
Tel: 301-496-6792
Fax: 301-496-7063
email: koyanis@occ.nci.nih.gov
www: http://www.chid.nih.gov/ncichid/  or www.rex.nci.nih.gov  
or www.cancernet.nci.nih.gov
Publications Books/ pamphlets/ pediatric, low-literacy and non-English materials
  Interactive and audiovisual products
 
National Chronic Pain Outreach Association
PO Box 274
Millboro, VA 24460-0274, USA
Tel: 540-862-9473
Fax: 540-862-9485
Email: ncpoa@cfw.com
www: www.chronicpain.ord
Publications: Information packet (free)
  Books/tapes/videos (purchase)
Referrals: Physicians
Other: National Support groups
  Quarterly Newsletter "Lifeline"
 
National Fibromyalgia Research Association
PO Box 500
Salem, OR 97308, USA
Tel: Fibromyalgia Alliance of America: 1-888-717-6711
www: http://www.teleport.com/~nfra
Publications: Information brochures ($10.00 for 50)
Other Support groups:
 
National Headache Foundation
428 W St James Place, 2nd Floor
Chicago, IL 60614-2750, USA
Tel: 773-388-6399 or 888-NHF-5552
Fax: 773-525-7357
www: http://www.headaches.org
Publications: Information brochures (free) (purchase)
  Books/tapes/videos (purchase)
Referrals State list of NHF physician members available
Other: Support groups
 
National Hospice and Palliative Care Organization
1700 Diagonal Rd., Suite 300
Alexandria, VA 22314, USA
Tel: 800-658-8898 / 703-243-5900
Fax: 703-525-5762
email: webmaster@NHPCO.org
www: www.NHPCO.org
Publications: Information brochures (free) (purchase)
  Books/tapes/videos (purchase)
Referrals: Hospice referral services
Other: Support groups referrals/information helpline
 
National Multiple Sclerosis Society
733 Third Ave
New York, NY 10017-3288, USA
Tel: 800-344-4867
email: info@nmss.org
www: www.nmss.org
Publications: Written Information
Other: Support groups
 
National Organization for Rare Disorders
100 Rt. 37
PO Box 8923
New Fairfield CT 06812-8923
Tel: 203-746-6518
Fax: 203-746-6481
email: orphan@rarediseases.org
www: www.rarediseases.org
Publications: Information reports - First one free, all subsequent, purchase
Other: Information about support groups

National Spinal Cord Injury Association
8701 Georgia Ave, Ste 500
Silver Spring, MD 20910, USA
Tel: 800-962-9629
Fax: 1-301-588-9414
email: resource@spinalcord.org
www: www.spinalcord.org
Publications: Information brochures (free)
Other: Information 'hot line'.(M - F)
  Support groups

National Vulvodynia Association
PO Box 4491
Silver Spring, MD 20914-4491, USA
Tel: 301-299-0775
Fax: 301-299-3999
www: http://www.nva.org
Publications: Information brochures (free)
  3 newsletters a year (purchase)
Other: Support groups
New England Medical Center
c/o R.J. Kulich, PhD
750 Washington St. #298
Boston, MA 02111, USA
Tel: 617-636-6208
Fax: 617-636-4674
Publications: Information brochures (free)
  Books/Tapes/Videos (purchase)
Other: Physician/healthcare referral service
Oncology Nursing Society
125 Enterprise Drive
RIDC Park West
Pittsburgh, PA 15275-1214, USA
Tel: 866-257-4ONS (toll free)
Fax: 877-369-5497 (toll free)
email: customer.service@ons.org
www: www.CancerSource.com/resources   and www.ons.org 
Open Society Institute - Project on Death in America
400 W 59th St, 4th Floor
New York, NY 10019, USA
Tel: 212-548-0150
Fax: 212-548-4613
email: pdia@sorosny.org
www: http://www.soros.org/death.html   
 
Oregon State Cancer Pain Initiative
PO BOX 6313
Portland, OR 97228-6313, USA
Tel: 503-323-2357
Fax: 503-375-4756
email: diane.cockburn@salemhospital.org
Publications: Information brochures (free)
 
PainLink News (membership site for professionals and institutions developed by Educational Development Center, Inc with support from the Mayday Fund of New York City)
 
www: http://www.edc.org/PainLink 
 

Peripheral Nerve Society
1501 Guggenheim Bldg
200 First St SW
Rochester, MN 55905, USA
 
Reflex Sympathetic Dystrophy Syndrome (RSD) Association of America
PO Box 502, 
Milford, CT  06460, USA
Tel: 203-877-3790
Fax: 203-877-3790
email: judyrsds@earthlink.net
www: http://rsds.org 
Publications: Information brochures (free) (purchase)
  Books/tapes/videos (purchase)
Referrals: Physician/Healthcare services
Other: Support groups
 
Responsible and Adequate Fibromyalgia Treatment
131 Felix Dr
Ojai, CA 93023
Tel: 805-646-1939
Fax: 805-646-1939 (call first)
email: raft@dixie.ncplus.com
www: http://dixie.ncplus.com
Publications: Information brochures (free) (purchase)
  Books/tapes/videos (purchase)
Referrals: Physician/Healthcare services
Other: Awareness/educational activities including conferences
  Support groups/information ‘hot line’ (daytime only)
 
Rest Ministries
PO Box 502928
San Diego CA 92150, USA
Tel: 619-237-1698 or toll free: 1-888-751-7378 (REST)
email: Rest@restministries.org
www: www.restministries.org
Resources:  
Publications: Information brochures (free)
  Books/tapes/videos (purchase)
Other:
Internet support: online support communities, daily devotions emailed, support ‘list’, chat , message boards,
Support groups "Hopekeepers";
Information ‘hot line’ for practical assistance from churches.
RSD Association of California
PO Box 771
San Marcos CA 92079-0771, USA
Tel: 760-744-3266
Fax: 760-744-3266 (same)
email: rsdsa_ca@abac.com
www: www.RSDSA-CA.org  
Resources:  
Publications: Information brochures (free)
  Books/tapes/videos (purchase)
Referrals: Physican/Healthcare Services
Other:
Support groups
Hosts medical conferences and patient rehabilitation workshops
 
Robert Wood Johnson Foundation, The
Attn: Victoria D. Weisfeld, Communications Office
College Road and Rt.1
PO Box 2316
Princeton, NJ 08543-2316, USA
Tel: 609-243-5926
Fax: 609-452-1865
email: vweisfe@rwjf.org
www: http://www.lastacts.org
 
Sickle Cell Disease Association of America, Inc.
200 Corporate Pointe, Suite 495
Culver City, CA 90230-7633, USA
Tel: 310-216-6363 or 800-421-8453
Fax: 310- 215-3722
Publications: Information brochures (free)
  Books/tapes/videos (free) (purchase)
Referrals: Physician/Healthcare services
Other: Support groups
 
Southern Pain Society
c/o A. Ray, MD
9150 SW 87th Ave, Suite 107
Miami, FL 33176, USA
Tel: 305-595-4681
Fax: 305-273-9584
email: ARay755121@aol.com
www: www.southernpain.org 
Resources: Information 'hot line', Scientific articles and lectures
  Health News

Southern California Cancer Pain Initiative (SCCPI)
c/o Barbara Hastie, PhD
1500 E. Duarte road
Duarte, CA 91010, USA 

Tel: 626-359-8111 x 63840
Fax: 626-256-8782
email: SCCPI@coh.org
www: http://sccpi.coh.org 
Resources: Quarterly newsletter (free)
Trigeminal Neuralgia Association (TNA)
2801 S.W. Archer Road, Suite C
Gainesville,  FL 32608,  USA
Tel: 352-376-9955
email: tnainfo@aol.com
www: http://www.tna-support.org
Publications: Information brochures (free)
Referrals: Limited Physician/Healthcare services
Other: Support groups/ Association Newsletter
  Information 'hot line'-patient information specialist

Varicella-zoster Virus Foundation 
See VZV Research Foundation

Vulvar Pain Foundation
203½ North Main St, Ste 203
PO Drawer 177
Graham, NC 27253, USA
Tel: 336-226-0704
Fax: 336-226-8518
www: http://www.vulvarpainfoundation.org
Publications: Information brochures (free)
  Books/tapes/videos (purchase)
Other: Physician/Healthcare suggestion/information service
  Information ‘Hot line’.Phone answered:Tues & Thurs:8.30 - 4.30
  Seminars/ Support groups
 
Virginia RSD Association
9770 Osborne Landing
Richmond, VA 23231-8335, USA
Tel: 804-795-5343
Fax: 804-795-7179
Email RSDINVA @AOL.com
Publications: Information brochures (free)
Referrals: Physician/Healthcare services
Other: Support groups
VZV Research Foundation
40 East 72nd Street
New York, NY 10021
 
www: http://www.vzvfoundation.org
Publications: Information brochures (free)


Western USA Pain Society
c/o Fred E. Nowroozi, MD
Ctrs. for Excellence/Pain Mgmnt
11180 Warner Ave #167
Fountain Valley, CA 92708

Tel: 714-557-7246
Fax: 714-557-7253
Publications: Information brochures (free)
  Books/Tapes/Videos (purchase)
Other: Support groups

ZIMBABWE

Island Hospice
PO Box CY 7,
Causeway
Harare, Zimbabwe

Email: island@mango.zw

 

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This page was updated on November 5, 2002


 


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